Monday, November 11, 2013

A Super Bowl Ring, a Governor and a Special Congressman dad!!


Incredible day....Carson got to meet three incredible people!!

Former Pittsburg Steeler,Kendall Simmons....diagnosed with T1D in his second season.....he let Carson wear his SuperBowl ring!!!
 


And then, seeing Congressman George Nethercutt (WA-R) ....so much of the research for T1D in DC is because of this wonderful man ....who happens to be the daddy of a little girl who was diagnosed with T1D at 6 years old....He actually ran for office because of his daughter's diagnosis! 

meeting Governor Otter (ID-R) Governor Otter left the huge crowd all around him to practically run down the bay hallway at the resort...calling Carson's name....He was so kind asking Carson questions about his T1D and listening to our request for support on behalf of the ADA School Nurses Act in ID. As we were finishing up, Carson reached up and took off the golden JDRF sneaker lapel pin he wears on his suit.....(his only one that he loves) and GAVE IT TO THE GOVERNOR....I don't believe there was a dry eye in the room as Carson told the Governor to wear it so he could remember him and all the kids living with T1D...the governor put it on immediately and said he would surely remember!!

Thursday, October 17, 2013

Carson speaks to 1st-8th grade student body at North idaho S.T.E.M. Charter Academy

Carson was invited to speak to the student body of the North Idaho S.T.E.M. Charter Academy recently as their keynote speaker at the INVENT IDAHO Kick off Celebration!  He spoke of where his very first win at INVENT IDAHO has taken him....from NICKELODEON to Capitol Hill! He even got to sign a few autographs! "So, start inventing," he told the students, "You never know where your inventions may take you!"


Thrilled to have DISNEY's Family website write about Carson again!!!

www.spoonful.com/type1/report-on-the-jdrf-children-s-congress

Carson's story on NICK NEWS with Linda Ellerbee

http://news.nick.com/07/2013/03/kids-go-to-washington-to-push-for-funding-for-diabetes-research/

Representative Labrador SIGNS the SDP!!!!


Carson's Cruisers raises $5414.43 for the 2013 JDRF Walk to Cure Diabetes






JDRF Outreach meetings in Coeur d Alene!!!

Our JDRF Outreach meetings in Coeur d Alene (in partnership with Kootenai Diabetes and Endocrinology Center) are going great guns!!!  We have been meeting for 9 months now and are excited about all the T1D families who are getting the support they need in our own community!  We have had some great meetings, including a kid panel with some of our community's kids with T1D!   This summer we took our meetings to the lake, parks, and a fire station...our favorite T1D firefighter, Adam, is one of the best role models we know for our kids!!  Coming up: A trip to an airplane hanger in November and cooking class for kids and parents in December!!



North Idaho Pediatric Dental Center sponsors "Carson's Cruisers" shirts for the 2013 JDRF Walk to Cure Diabetes

Thanks to Dr. John Ukich and the staff of North Idaho Pediatric Dental Center, Carson's Cruisers team members will not have to purchase a shirt to wear for the 2013 JDRF Walk to Cure Diabetes...all their hard earned dollars will go DIRECTLY to JDRF for research and finding a cure!!!

"Clowning For A Serious Cause" article in TDmonthly, the leading online magazine in the Toy industry!

www.toydirectory.com/monthly/article.asp?id=5409

Tuesday, July 30, 2013

Your invitation to FIGPICKELS TOY EMPORIUM's "Carson's Journey" event!!

Figpickels Toy Emporium owners, Brett and Susan Sommers surprised us a few months ago when they chose Carson and JDRF (Juvenile Diabetes Research Foundation) as the recipient of a Charity give-a-way from TD Monthly!   They have been absolutely amazing with their JDRF sneaker sales...raising over $250 in the first 2 1/2 days!  If you stop in you will hear, "Shoe in the Bag!" echo throughout the store when a sale is made....paper sneakers fly through the air into a bag and then get placed on the wall with a BIG, "Shoe on the Wall!"  Train Whistles go off, noise makers blast and people start asking, "How can I get in on this?"  And what an incentive!!!...Each sneaker is a ticket into the giant TOWER OF TOYS donated by several big name toy companies!  AND, Figpickels hasn't stopped there...they have many stores in the Coeur d Alene Resort Shops selling sneakers and giving 10% of their sales to JDRF on Aug. 10!  This is your personal invitation to join us on August 10 for balloon animals, clowns, magic, juggling, and MORE!

FIGPICKELS TOY EMPORIUM kicks off "Carson's Journey"

 Kendama Co pros on their NW Pro Tour stopped by FIGPICKELS to kick off the "Carson's Journey" sneaker sales! Gave Carson a new prototype kendama signed by them all!
Frank Paretti, author, stopped by to buy 5 sneakers in honor of Carson for JDRF! "Mr. Henry" is awesome!

JDRF Children's Congress photo with celebrities and Vice President Joe Biden....look where it showed up next!!!!

 

                                           Megatron in TIMES SQUARE, NEW YORK!!!!

Advocates Testify at Senate Diabetes Hearing - JDRF: Improving Lives. Curing Type 1 Diabetes

Advocates Testify at Senate Diabetes Hearing - JDRF: Improving Lives. Curing Type 1 Diabetes

Young Diabetes Advocates Take Capitol Hill by Storm - JDRF: Improving Lives. Curing Type 1 Diabetes

Young Diabetes Advocates Take Capitol Hill by Storm - JDRF: Improving Lives. Curing Type 1 Diabetes

Monday, July 15, 2013

People who make a HUGE difference in T1D research!!

                                          The kids themselves advocating on Capitol Hill!!
                                               Michael, Neils, Brian (JDRF superstars)
                                                      JDRF Global partners  head cheese!
                                                            Nova-Nordisk spokesman
                                                      CEO of MEDTRONIC
                                                   JDRF Advocacy Government relations
                                   Camille Nash, volunteer advocacy grassroots extraordinaire!
                                    JDRF's Amanda and Brain clowning around with Carson!

JDRF 2013 Children's Congress Highlights - First Installment

CC13 Delegate Carson, ID

2013 Children's Congress: Promise to Remember Me Song

2013 Children's Congress Town Hall: Role Models in Diabetes

JDRF 2013 Children's Congress Highlights - Second Installment

JDRF 2013 Children's Congress Highlights - Third Installment

Sunday, July 14, 2013

Day 2 of JDRF Children's Congress TOWN HALL

I want to highlight some of the amazing celebrities who were at CC13 ....all of these celebs have T1D and gave of their time to come and be incredibly HUGE role models in the lives of our kids....Carson was chosen to ask a question during the TOWN HALL meeting, which was very exciting!!!


Charlie Kimball, Indy Car race car driver, diagnosed with T1D in 2007 and the first licensed driver with diabetes in the history of the IndyCar to race at the highest level of the series.

Mary Mouser, actress known for her role as Lacey Fleming on ABC's Body of Proof and DISNEY channel star in Frenemies...diagnosed with T1D at the age of 13.

Dr. Aaron Kowaiski, JDRF's vice president  and internationally recognized expert in the artificial pancreas project......diagnosed with T1D at the age of 13.

Nicole Johnson, Miss America 1999, was diagnosed with T1 in 1993.  Here she is with her diabetic alert  labradoodle  dog...soooo darn cute and he alerted her to a low blood sugar while we were talking to her!

Crystal Bowersox, singer/songwriter and American Idol runner up in season 9....diagnosed at age 6.

Leslie Adkins, journalist and writer, NBC assistant producer for DATELINE...diagnosed with T1D at the age of 5.

Gary Hall, Jr has 10 Olympic medals in swimming and is a member of the Olympic Hall of Fame.  He was diagnosed with T1D at age 24.  Gary was chilling out at the pool one night with the few lucky kids that were there and challenged them to a race!  How many people can say they have raced the fastest swimmer in the world!?

Brian Kenny, sportscaster for MLB Network and Brian Kenny show on NBC sports radio. His daughter, Camille, has T1D

Ray Allen, 10 time NBA All-Star who currently plays for the 2013 NBA Champions, the Miami HEAT. He and his wife, Shannon, are the parents of Wlaker, diagnosed with T1D at 17 months old.  Ray testifyed in the Senate hearing on Wed and was soooo incredibly humble and made us all cry!!!

Jean Smart, Emmy Award-winning television, film and stage actress was diagnosed with T1D at the age of 13.  She is known for her many TV roles including those on Designing Women, 24, Frasier and Samantha Who?  She said some very endearing words to Carson and was so kind and compassionate....I was in tears!  Jean also testifyed at teh Senate hearing about her life with diabetes and was so very effective and well versed!  JDRF could not have picked two better people to testify!

And our favorite little guy, Walker,...Ray and Shannon Allen's little T1D...
not quite tall enough for the unicycle yet, but says he is getting one!!




Flashback to Day 1 of JDRF Children's Congress

Just trying to catch up, guys...so many of you were so faithful to check in every evening...only to find us not there!  So Sorry.....much busier than i had anticipated.....advocacy is HARD WORK, but very IMPORTANT!
                                               Hasan, JDRF Advocacy leader of the pack, and Carson
                                          Jeffrey Brewer, CEO of JDRF, and Carson

Carson was asked along with about 14 other CC kids to come early and do a photo shoot for JDRF national publications and one of our sponsors...Build a Bear.  He also had an on camera interview with JDRF....he had taken his unicycle down to the photo shoot to ride during takes and it turned out to be a real hit in the photos...can't wait to see where they show up!  Here is one of the many photos a parent took and posted.




After registration, all 161 kids had song rehearsal and the performance of the "Promise To  Remember Me" song with Crystal Bowersox, runner up of AMERICAN IDOL season 9, diagnosed with T1D at the age of 6.


State Delegation photos were next with Crystal Bowersox and Gary Hall, Jr. 10 Olympic medalist in Swimming, diagnosed with T1D at the age of 24.


The Opening Banquet dinner was a real memorable time, as all the delegates got to take the stage and tell a little about themselves!

 Carson had such a great time passing out clown noses...we even had JDRF BLUE noses...here are some JDRF great interns, Moria, and Carson


This photo was taken at the Publicity photo shoot within 20 minutes of these three meeting....Jonah, Carson, and Austin became fast friends and stuck together throughout CC!