Tuesday, February 12, 2019

2018 JDRF Government Day in Washington, DC

In February my mom got the chance to go back to DC for JDRF Government Day where she was able to meet with our Idaho Congressional Delegation and thank them for their support of the Special Diabetes Program which give $150 million annually to T1D research!

JDRF Grassroots leaders from all 50 states storming Capitol Hill to meet with Every memeber of Congress to thank them for their support of the Special Diabetes Program!


JDRF CEO, Derek Rapp, and his wife, Emily


JDRF Advocacy powerhouse and my friend, Camille Nash


Thank you, Rep. Labrador, for your support of the SDP!


Thank you, Rep. Simpson, for your support of the SDP!


Thank you, Senator Risch, for your support of the SDP!


Thank you, Senator Crapo, for your support of the SDP!

Josh Ochs interviewed me on his podcast!





Josh Ochs, social media expert, came to my high school to talk to students about how to stay safe and  shine online and leave a positive digital footprint for colleges/universities and future employers. He was intrigued by my positive presence online and asked me to do a podcast with him! It was pretty cool! Listen to my podcast here!

https://simplecast.com/s/298f9039

In this episode, Josh Ochs sat down with a high school student named Carson Magee who raises awareness for students with Type 1 diabetes. Learn how Carson built his Google presence as Josh asks him questions on how students can shine online.
Key Takeaways:
  • When you get a lot of popularity through the internet it can boost a parent too.
  • Post content online that can help others
  • There's a few advantages of being a kid but having an adult (or someone that can guide you through that process) really helps when building a positive online presence
How did you discover your condition?
When I was 7 years old I was diagnosed with Type 1 diabetes. At first we didn't know what was going on. I was drinking a lot of water. I felt tired all the time until my mom had to go away on a trip. She checked me into the doctor, saw the results, and said that I had type 1 diabetes. The doctor is a good friend of ours; he came back with tears in his eyes and said, “pack your bags and go to the hospital.” My diagnosis was a life changing moment. I didn't know what was going on but I realized that I had an autoimmune disease and that I had to get finger pokes and shots every day for the rest of my life until there was a cure. Those first few weeks in the hospital, I felt alone. I soon found out that there were other kids like me that had type 1 diabetes. I felt there was a need to advocate for type 1 diabetes because it is a horrible disease. I wanted to help out. Not only me but the friends that I had met that have type 1 diabetes as well. I started out with coming up with small ideas that could help me out with type 1 diabetes. I entered an invention contest called Invent Idaho and I ended up getting best of show the first year, for a diabetic invention of mine called the “Swipe and Wipe”.
What did you do to raise awareness about Type 1 Diabetes?
At first I didn't reach many people. A few months later I was featured on a Nickelodeon show and when it aired the entire community held a showing of the game show. That boosted my name and got the community involved. It helped raise awareness for Type 1 Diabetes. From there it empowered me to go on to do more things. I got excited and felt that burn to go out and do whatever I could to raise money to one day get rid of T1D.
How did you come to speak on Capitol Hill?
I entered a contest called Children's Congress in 2013. There were 150 kids that got chosen to speak at Capitol Hill and talk about raising awareness for type 1 diabetes. There is a bill that we were advocating to be passed which was called the SDP bill and it raised $150 million a year towards juvenile diabetes research. That's a big part of finding a cure for type 1 diabetes. I got chosen for that contest.
How did Carson build and grow his online presence?
Carson has a lot of ideas, he always come up with ways to advocate for what he believes in. After the contest, a lot of TV stations and radio shows wanted to interview him. I started looking and there was quite a bit of information out there about him online. It was somewhere around that time that Carson decided to start a blog.
When he went to Capitol Hill, we started that blog. What really boosted the people looking at his blog was when he went to a Juvenile Diabetes Research Foundation co-sponsored contest with Ford Motor Company and he won for the country and designed a race car. Ford Motor Company put his blog in a piece that blasted out to every dealer. His blog was getting thousands of hits daily.
From there, people started calling us. At times, I almost had to be sure that I was not trying to put my kid out there -- because to be honest when you get a lot of popularity online, it can boost a parent too. I had to be very careful that I wasn't exploiting my child. There were times we had to say he didn't want to do an interview. I had to listen to him as a young boy. Most everything he wanted to do. He wanted to do it but not because of the media. It's because he had a passion for advocating for this disease to get cured.
Carson’s quick tips on how students can build their online presence:
  • Get known
  • Find a mentor
  • Be persistent
What are some tips for other parents who are wondering how their student can be online in a positive way?
I'm a school counselor over in Spokane Elementary School. We talk to kids all the time about digital footprints. We warn them that their digital footprint can be positive or negative. I was a little bit leery at first of Carson being online. We didn't go searching for popularity online, it kind of came to us. But we have found the positive in it.

Sunday, February 25, 2018

Fourth Annual Idaho Type 1 Diabetes Awareness Day at the State Capitol


On Feb 12, we held our Fourth Annual Type Diabetes Awareness Day in Idaho. Above is the story KIVI Channel 6, Boise, aired on their Fox and ABC evening news that night. A very special thanks to reporter, Maleeha Kamal, for covering our event. 
We are grateful for Andreas Braunlich and his killer graphic design skills producing our invitations and posters free of charge each year! And, thank you to Office Max, CdA, for printing our invitations and making our large posters free of charge each year!!


So many help to make this day possible each year!  Thank you to our vendors: Camp HODIA, Central District Health Deptartment, Medtronic, Dexcom, Sanofi, Lilly Omnipod, and JDRF Mountain Valley Chapter.


 Madison Grady, Special Assistant  to the Governor, wrote our 2018 T1D Awareness Day Proclamation
 Malcolm had just been diagnosed when I met him last year at our 3rd annual T1D Day! He was excited to show me his Tandem T Slim pump (just like mine)
 These young ladies were visiting the capitol for an unrelated event and were so excited to see our event because one of these girls has T1D and another one has a brother with T1D. We were able to get them signed up for some T1D events in Boise!
 I told a little history of how I unicycled up the Governor 5 years ago and asked him for a T1D day like this for the state of Idaho!! I never would have believed he would have taken me seriously and how this event has gotten larger with each year!
Thank you, Lawerence Denney, Idaho Secretary of State, for reading our T1D Awareness Day Proclamation!


Thank you KIVI for your coverage of our event!
 ID Sec of State, Lawerence Denney, and Claire Shelton, 2017 JDRF Children's Congress delegate for Idaho!
Huge thanks to Amy Colgan and Wendi Tanner from JDRF for ALL your help! We could not have done it without you!






We had the opportunity to recognize The Rag Company who raised $2000 for JDRF!
 
Some of our Special guests who came out for T1D Awareness Day in Idaho
 McCall Salinas, Former Miss Boise Outstanding Teen whose platform is awareness and advocacy for T1D!








 Interviewing with KIVI Ch. 6 Boise


 Idaho State Capitol, Bosie, ID








 This mom has an adult daughter who was recently diagnosed with T1D and she was excited to have more information and become involved with JDRF!
 All of our guests (ID senators/representatives and community) signed posters thanking our U.S. Senators and U.S. Representatives for supporting the Special Diabetes Program bill which gives $150 million each year toward research for a cure for T1D! My mom travels to Washington, DC in 2 weeks to present these posters to all 4 ID Congressmen when she meets with each of them at their respective offices on Capitol Hill during JDRF Government Day
 Thank you, Maleeha Kamal, KIVI, for telling our story and spreading awareness about T1D and the mission of JDRF to treat, prevent and cure Type 1 Diabetes!

Wednesday, June 21, 2017

I Designed a Shirt! All Proceeds to JDRF

Are you feeling like you want to give to charity, but you're just not quite sure how?  If you answered yes...make sure to check out my new shirt design. You can order your own with the link below and the money will be given to the Juvenile Diabetes Research Foundation!

http://teamstore.gtmsportswear.com/CarsonsCruisers2


Saturday, April 8, 2017

2017 JDRF Government Day, Washington, DC

My mom has always wanted to go to JDRF Government Day. Thanks to JDRF UT/ID she got an invitation to attend this year! 150 advocates met with every member of Congress during the 3 day event to thank the members for their support of the SDP which gives $150 million each year! We need this money to continue researching for a cure!
 All the JDRF advocates, March 2017
 Idaho U.S. Senator Mike Crapo's post
 Utah and Idaho advocates
 Ready to storm the Hill
 Amy Colgan and Fondra Magee, ID advocates
 Idaho U.S. Representative Mike Simpson
 Dinner with advocates
 Idaho U.S. Representative Raul Labrador's staffer
 Idaho U.S. Senator Jim Risch. I sent some gifts I made with my mom for each of the Congressmen and I madea short video for each Congressman. When Senator Risch watched my video to him, he asked my mom if he could record one for me and sent it to my phone right then! That was awesome!